• Medicaid | The Lived Experience:

    Unwinding the Continuous Coverage Requirement

    After the pandemic-related Medicaid continuous coverage requirement ended March 31, 2023, the Department of Children and Families (DCF) began redetermining the eligibility of Florida’s enrollees and sending termination notices to those deemed no longer eligible or who failed to complete their renewal within 30 days. The notices are extremely confusing and often lack adequate explanation as to why DCF determined the person(s) to be ineligible, some terminations are clearly erroneous, and people are generally unaware of their right to appeal or how to do so. The personal narratives below, as well as multiple stories in national and state media, illustrate how Florida’s redetermination process is hurting vulnerable children and families.

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    At Least 2 Million Children Have Lost Medicaid Insurance This Year

    Many of the children were eligible for federal aid, experts said, but errors have been common as states “unwind” assistance from earlier in the coronavirus pandemic. Christina describes the harm caused to her family after her kids were erroneously terminated from Medicaid twice.

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    The Biden Administration Is Slow To Act As Millions Are Booted Off Medicaid

    Up to 30 million of the poorest Americans could be purged from the Medicaid program, many the result of error-ridden state reviews. Lily and her FHJP lawyer describe how the state erroneously terminated Lily‘s Medicaid on 2 different occasions.

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    Hundreds of thousands of children are being kicked off of Medicaid

    Once they lose Medicaid –even if still eligible– “regaining coverage can be frustrating and time-consuming. Over several weeks, Tanya spent hours on hold trying to restore her kids’ insurance."

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    Class action challenges Florida’s termination notices

    Over 182,000 Floridians have been sent incomprehensible termination notices. FHJP and NHelP allege that many have no idea if the State is making the right decision and whether (or how) to challenge the termination if they think it is wrong.

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    Millions may soon lose Medicaid

    Under Florida’s Plan, children with complex medical needs like Penelope were supposed to have their redeterminations postponed until the end of the Medicaid “unwind” period.

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    Florida declining help with Medicaid unwinding

    The federal waivers aim to reduce the risk of eligible families losing Medicaid coverage due to procedural errors.

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    Staggering numbers of Americans lose coverage

    Since pandemic protections ended on April 1, those initially losing coverage include Florida children with complex medical conditions. FHJP is helping them.

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    Florida Medicaid changes leave some scrambling

    Florida has purged kids younger than 21 with medically complex conditions until next spring, a variation from their plan for Medicaid redeterminations.

  • The STORIES, Media and Information

    Lance | St. Lucie County, FL


    Lance’s 15 year-old son, who has type 1 diabetes, was terminated from Medicaid. It took Lance more than two months–and untold hours of effort and worry–to fix it.


    Read More

    Penelope | Palm Beach County, FL

    Palm Beach County, FL

    With no notice, a medically complex five year old who depends on daily medications and ongoing treatments suddenly lost her Medicaid. Her family is now frantically seeking insurance for their daughter.


    Read More

    Christina | FL


    Christina’s 4 minor children are clearly eligible for Medicaid. And yet they were terminated twice for allegedly not “renewing on time.”



    Read More

    Jessica | Clay County, FL

    Clay County, FL

    After a confusing DCF notice implied that Jessica’s kids were losing Medicaid and would be transferred to Florida KidCare, Kidcare then denied their coverage and sent them back to Medicaid.


    Read More


    Michael W. | Seminole, FL

    Seminole, FL

    After struggling with Parkinson's, Michael was finally enrolled in Florida’s Long-Term Care Waiver program in 2022, allowing him to receive needed services at home. But just a year later, his Medicaid was improperly terminated, resulting in the loss of his essential in-home services and thousands of dollars in out-of-pocket expenses for his family.


    Read More

    Andrew and JoEllen | Citrus County, FL

    Citrus County, FL

    When a profoundly disabled young man was about to be wrongfully terminated from Medicaid, his stepmother quickly filed a pre-termination appeal. This ensured there would be no interruption in his life sustaining nursing services; but the termination never should have happened.


    Read More

    Laurie and Adam | Jackson County, FL

    Jackson County, FL

    Laurie’s son, who has type 1 diabetes, cannot lose health insurance. His Medicaid was not scheduled for redetermination until March 2024. But she got a confusing notice in September 2023 saying her son would lose Medicaid at the end of the month, and she's spent panicked days trying to ensure his ongoing coverage.


    Read More

    AnaMaria | Palm Beach County, FL

    Palm Beach County, FL

    AnaMaria, a chronically ill single working mother, and her 20 year old son just lost their Medicaid coverage due to Florida’s meager income-limit for adults.


    Read More

    NPR Article

    St. Lucie County, FL

    After a series of incomprehensible notices incorrectly ending her children’s health coverage, Kirsten’s kids are finally back on Medicaid. But fixing the problem was incredibly time-consuming, and Kirsten is afraid it could happen again.


    Read More

    Lily | Miami, FL

    Miami, FL

    Lily, seven months pregnant, was erroneously terminated from Medicaid, and she had to spend countless hours getting her insurance back. 


    Read More



    NPR Article

    Miami-Dade County, FL

    A young mother is wrongly terminated from Medicaid for no reason and then denied a new application for the wrong reason. She speaks no English and is seeking answers for what happened. 


    Read More


    Lindsey | Hernando County, FL

    Hernando County, FL

    A new Mom, entitled to 10 more months of postpartum coverage, had to go to her DCF office 3 times to advocate for reinstatement of her Medicaid coverage, along with coverage for her young son who was also erroneously terminated.


    Read More

    Tanya | Duval County, FL

    Duval County, FL

    DCF terminated Medicaid coverage for Tanya and her entire family saying that she had not completed her renewal application, even though she had done so nine days before the coverage was due to end.


    Read More

    Sandra | Duval, FL

    Duval County, FL

    After DCF mistakenly sent notices to the wrong address, Sandra’s children lost their Medicaid and much needed health care coverage.



    Read More

    Liza M.J. | Miami-Dade County, FL

    Miami-Dade County, FL

    What it’s Like to be Newly Diagnosed with Breast Cancer and Then Have Your Insurance Terminated!


    Read More

    Carlos | Orange County, FL

    Orange County, FL

    Thanks to continuous Medicaid coverage throughout the COVID-19 pandemic, Carlos was able to receive treatment and medication for his back injury and depression. Now, that is ending and Carlos will no longer have access to the health care coverage he needs because Florida does not make coverage available to low-income parents like him.


    Read More

    Dylan | Lee County

    Lee County, FL

    Dylan, who suffered a stroke at birth which left him totally and permanently disabled, has relied on Medicaid for his entire life. His Mom has managed to raise him at home, but she just got a notice that his Medicaid was ending.


    Read More

    Fay | Polk County, FL

    Polk County, FL

    The sudden, confusing and chaotic loss of critical health care leaves Floridians like Fay with no options.


    Read More

    Why millions on Medicaid are risk of losing coverage in the months ahead

    Nassau County, FL

    As a single parent with serious health issues Marie* has relied on Medicaid to cover her essential medications and therapy. That coverage has now abruptly ended.


    Read More

    James B | Milton, FL

    Milton, FL

    James is trying to get important medical care before his Medicaid coverage ends. After that, he will not have access to health care coverage because Florida has not expanded Medicaid to people like him.


    Read More

    Melissa B | Milton, FL

    Milton, FL

    Melissa had Medicaid since the spring of 2020, but then her providers began charging copayments she could not afford, and her notices made no sense.


    Read More

    Cassidy | Clay County

    Clay County, FL

    A COVID "silver lining" for Florida's most medically fragile children will soon be ending.


    Read More


    Iris | Miami, FL

    Orlando, FL

    Hard working students and youth could face the loss of needed health coverage. Once the Public Health Emergency ends, Florida residents like Iris, a college student with asthma, could lose access to affordable healthcare needed for life-saving medications.


    Read More


    En Español

    S.T. | Hollywood, FL

    Hollywood, FL

    S.T. and her family are living on the edge, hanging on to their family’s Medicaid health insurance amid the COVID-19 pandemic, living in fear of losing the healthcare that keeps them alive.


    Read More


    En Español

    Nicole S. | Tampa, FL

    Tampa, FL

    The Life-changing Power of Medicaid Coverage for Domestic Violence Survivors During a Public Health Emergency


    Read More




    ABC News

    July 1, 2023

    Under Florida’s Plan, children with complex medical needs like Penelope were supposed to have their redeterminations postponed until the end of the Medicaid “unwind” period. (April 2024). But some parents of gravely ill children have suddenly learned that their child’s Medicaid had ended. Fortunately, the Florida Health Justice Project’s was able to help Penelope get back on Medicaid.


    Click here for more coverage of Floridians losing Medicaid and problems with the state’s redetermination process. 


    NPR Article

    August 23, 2023

    The lawsuit, which was filed as a class action by Florida Health Justice Project and the National Health Law Program, challenges the notices used to alert people that their Medicaid coverage is ending. As alleged in the suit, low-income individuals who are losing Medicaid coverage have no idea if the State is making the right decision and whether (or how) to challenge their loss of coverage if they think the termination decision is wrong.


    Read Complaint


    Read Declarations from Plaintiffs: Chianne D., Jennifer V.


    Read Press Release


    Ending The Continuous Medicaid Coverage Requirement Video

    April 10, 2023

    The video and portal materials have been created as a training tool and resource for legal services staff, navigators, and others who are assisting recipients during the “unwinding” of the pandemic-related continuous Medicaid coverage requirement.


    Visit Portal and Watch Video

    Advocate Referral Form

    Advocate Referral Form | Eligibility Assessments for Individuals Receiving Termination Notices

    April 20, 2023

    Medicaid is complicated, and recipients who receive a termination notice may be confused. The Florida Health Justice Project (FHJP) can provide Medicaid eligibility assessments, including whether the termination notice appears (in)correct and the client's legal rights. For clients who want to be referred to FHJP, please complete this form (English) or this form (Español) and hit the Submit Button.


  • Additional Relevant Resources

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  • Read STORIES Of Other Floridians

    Relying On Medicaid

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    Seniors and People

    With Disabilities

  • Share Your Story

    Join us in our work for health justice in Florida. Let your voice be heard! Please contact us:

    • If you have lost Medicaid since April 2023 or are currently on Medicaid and are concerned about losing coverage.

    Sharing your story --in your words and your voice-- is essential.

  • Making The Case For

    Medicaid Expansion


    The Florida Health Justice Project speaks with Dr. Olveen Carrasquillo, a leading Miami physician, about the challenges faced by his many uninsured patients and the devastating impact of Florida’s failure to expand Medicaid.



    Why Floridians Are Falling

    Through The Coverage Gap


    Florida is one of only 14 states that have not expanded Medicaid. As a result, approximately 445,000 Floridians fall into the “Coverage Gap,” meaning they have no path to affordable coverage

  • Read More About Floridians Who Need Medicaid Expansion

    June 2020 | Mental Illness and Criminal Justice in Florida by Alison Yager
    February 2020 | Florida's Medicaid Expansion Opportunity by Matt Childers
    February 2020 | Connecting the Dots by Alison Yager
  • Florida's Health Care Coverage Gap

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    Florida's Health Care Coverage Gap

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