• Medicaid | The Lived Experience: Children

    Over 2.5 million Florida children rely on Medicaid for all of their health care services. They are entitled to a comprehensive set of benefits, including periodic well child checkups and screens, as well as coverage for any medical service that is “medically necessary” for treating the child’s condition.

  • The STORIES, Information, Issues and Media

    Miriam | Miami, FL

    Miami, FL

    While dealing with breast cancer, medical debt, and COVID- related job loss, Miriam and her children are grateful for Medicaid.

     

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    Mientras luchan contra el cáncer de mama, las deudas médicas y la pérdida de empleo relacionada con COVID, Miriam y sus hijos están agradecidos por Medicaid.

     

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    Ahmaria | Miami-Dade County

    Miami-Dade County, FL

    Ahmaria shares her experience with Medicaid in Florida, and how it provides the 19 year old college athlete healthcare coverage.

     

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    Aisha | Miami-Dade County

    Miami-Dade County, FL

    Aisha shares her experience with Medicaid in Florida, and how it benefits her son with special needs.

     

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    Joselyne | Miami-Dade County

    Miami-Dade County, FL

    Joselyne shares her experience with Medicaid in Florida, and how it provides treatments for her son with special needs.

     

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    Crystal | Miami-Dade County

    Miami-Dade County, FL

    Crystal shares her experience with Medicaid in Florida, and how it provides healthcare for her four children.

     

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    Fatima | Miami-Dade County

    Miami-Dade County, FL

    Fatima shares her experience with Medicaid in Florida, and how it helps her afford healthcare for her granddaughter.

     

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    Aisha | Miami-Dade County

    Miami-Dade County, FL

    Aisha shares her experience with Medicaid in Florida, and how it is an essential part of life for her and her three children.

     

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    Zamanta | Miami-Dade County

    Miami-Dade County, FL

    Zamanta shares her experience with Medicaid in Florida, and how it provides health coverage for her daughter.

     

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    Quinnessa | Miami-Dade County

    Miami-Dade County, FL

    Quinnessa shares her experience with Medicaid in Florida, and how it provides speech and behavioral therapies for her daughter.

     

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    Veronique | Miami-Dade County

    Miami-Dade County, FL

    Veronique shares her experience with Medicaid in Florida, and how it helps keep her children healthy.

     

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    Qudsia | Miami-Dade County

    Miami-Dade County, FL

    Qudsia shares her experience with Medicaid in Florida, and how it provides health coverage for her elderly mother and three children.

     

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    Yanni | Miami-Dade County

    Miami-Dade County, FL

    Yanni shares her experience with Medicaid in Florida, and how it provides treatments for her son's seizures.

     

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    Tanya | Miami-Dade County

    Miami-Dade County, FL

    Tanya shares her experience with Medicaid in Florida, and how it provides coverage for her three children.

     

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    Susana | Miami-Dade County

    Miami-Dade County, FL

    Susana shares her experience with Medicaid in Florida, and how it provides healthcare coverage for her son who was born with Vacterl Syndrome.

     

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    Vanessa | Miami-Dade County

    Miami-Dade County, FL

    Vanessa shares her experience with Medicaid in Florida, and how it helps her afford treatment for her and her son.

     

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    Brooke | Miami-Dade County

    Miami-Dade County, FL

    Brooke shares her experience with Medicaid in Florida, and how it helps provide healthcare for her newborn daughter.

     

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    Maggie | Miami-Dade County

    Miami-Dade County, FL

    Maggie shares her experience with Medicaid in Florida, and how it provides her children excellent healthcare.

     

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    Aiesha | Miami-Dade County

    Miami-Dade County, FL

    Aiesha shares her experience with Medicaid in Florida, and how she would not be able to afford healthcare for her children without it.

     

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    Aafiyah | Miami-Dade County

    Miami-Dade County, FL

    Aafiyah shares her experience with Medicaid in Florida, and how she relies on it for her daughters' healthcare.

     

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    Yamill | Miami-Dade County

    Miami-Dade County, FL

    Yamill shares her experience with Medicaid in Florida, and how it helps the mother of six children afford their needed healthcare coverage.

     

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    Yordana | Miami-Dade County, FL

    Miami-Dade County, FL

    Yordana shares her experience with Medicaid in Florida, and how it provides coverage to care for her son.

     

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    Michelle | Miami-Dade County, FL

    Miami-Dade County, FL

    Michelle shares her experience with Medicaid in Florida, and how losing it prior to the COVID-19 pandemic impacted her children's health.

     

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    Gina | Miami-Dade County, FL

    Miami-Dade County, FL

    Gina shares her experience with Medicaid in Florida, and how it helps her son who has cerebral palsy.

     

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    Tocarra | Miami-Dade County, FL

    Miami-Dade County, FL

    Tocarra shares her experience with Medicaid in Florida, and how it helps her son who is asthmatic.

     

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    Dr. Tina Carroll-Scott | Miami-Dade County, FL

    Miami-Dade County, FL

    Dr. Tina Carroll-Scott, the Medical Director for the South Miami Children's Clinic, shares her experience with Medicaid in Florida, and how her patients benefit from having this healthcare coverage.

     

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    Sharon DeBriere | Duval County, FL

    Duval County, FL

    Sharon DeBriere, a Speech Therapist with nearly 40 years of service, shares her experience with Medicaid and how it helped her clients receive critical treatment.

     

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    Victoria | Lee County, FL

    Lee County, FL

    Victoria shares her experience with Medicaid in Florida and seeking help for her autistic daughter.

     

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    Tal | Former Florida Resident

    Lee County, FL

    At age 23, Tal is a successful actress in a Netflix series thanks to the valuable lessons learned and skills acquired through Medicaid funded therapies and support she received growing up in Florida. She didn’t learn to speak until she was 4-years-old. Today, Tal proudly communicates for a living!

     

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    The Right to Medically Necessary Treatment for Florida’s Children

    Although Florida state courts have repeatedly found that the state’s definition of Medicaid necessity for children is more restrictive than the standard in federal Medicaid law, the state has refused to correct its standard. This fact sheet compares the broad standard under federal law with the limited standard used by Florida and provides information on what parents or pediatricians should do if/when a child is denied coverage of a needed service.

     

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    Class action lawsuit seeks to stop Florida Agency for Health Care Administration from denying care to children based on its illegal Medicaid standard

    08/06/2021

    The Florida Health Justice Project (FHJP), National Health Law Program
    (NHeLP), and attorney Joshua Norris have filed a federal class action lawsuit against the Florida Medicaid agency, the Agency for Health Care Administration (AHCA) on behalf of Medicaid beneficiaries, including
    two medically fragile Florida children. All under the age of 21, these children have been denied coverage for medically necessary services based on a standard that violates federal Medicaid law.

     

    Read Press Release

     

    Read media coverage resulting from lawsuit:

    The Public Health Emergency (PHE) and Extended Medicaid Coverage: Q & A for Florida Medicaid Recipients

    10/2021

    In this Q & A for current Medicaid recipients, FHJP provides answers to some basic questions regarding the Public Health Emergency (PHE) and continuous Medicaid coverage. This includes, e.g., examples of people who are still on Medicaid due to the PHE even though they are no longer “technically” eligible; what will happen when the PHE ends; what are proactive steps Medicaid enrollees can take before the PHE is officially declared to be over.

     

    Read Q&A

     

     

  • Read STORIES Of Other Floridians

    Relying On Medicaid

    Former Foster

    Care Children

    Pregnant

    Women

    Low-Income

    Parents

    Seniors and People

    With Disabilities

  • Share Your Story

    Join us in our work for health justice in Florida. Let your voice be heard! Please contact us:

    • If your child was/is being helped by Medicaid. Sharing your story will help support this important program.

    - or -

    • If your child is being denied coverage for any medical treatment that your healthcare provider says is necessary. This includes treatments such as  speech therapy, prescription drugs, home health care, durable medical equipment, etc. Sharing your story is part of the solution in fixing problems for your child and others.

    Sharing your story --in your words and your voice-- is essential.

    Share Your Story | Soapboxx Video

    Share Your Story | Soapboxx Video

     

    In partnership with the National Health Law Program (NHeLP), we are using the Soapboxx video recording app to create short testimonials about how Medicaid has impacted you or a family member.

     

    Using your cell phone, tablet or computer, create a 20-90 second video about your experience with Medicaid. It's simple, easy and quick to do.

     

    Sharing your story on video will serve as a powerful advocacy tool to help educate the public, the media and policymakers in understanding how important Medicaid is for Floridians and their families.

     

    Learn How To Record Your Video

     

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    of Floridians who need health care coverage.

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    Your support will help us educate the public, the media and policymakers about the

    "The Lived Experience" of Medicaid recipients and their families.

  • We are grateful to the National Health Law Program (NHeLP) for their support of the

    "Medicaid | The Lived Experience" STORIES Project.

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