• Medicaid | The Lived Experience:

    Seniors and People with Disabilities

    The Florida Medicaid program provides coverage for extremely low-income individuals 65 and older as well as for individuals who have been found to be disabled.

     

    For low-wealth individuals who need nursing home level of care, Medicaid provides coverage for over half of all Floridians in nursing homes. A limited number of people who qualify for the nursing home benefit based on their low income and high level of need can enroll in the Long-Term Care managed care program that provides home and community based services (HCBS). There is a waiting list for this critical program.

     

  • The STORIES, Information and Issues

    Advocate's Guide to the Florida Long-Term Care Medicaid Waiver January 2021 (4th Edition)

    6/8/2021

    The Florida Health Justice Project (FHJP) sent the state Medicaid Agency a second comment letter urging the state to use the new federal funds available for HCBS to address the problems Alene, Shirley, Hortense and Thelma are dealing with. Also, as in the first comment letter, FHJP urged the state to provide an opportunity for stakeholder engagement and to be transparent.

     

    Read Letter

     

     

     

     

     

    Thelma and Hortense | Orlando, FL

    Orlando, FL

    Thelma quit a good job to care for her elderly mother, Hortense, who needs care 24/7. Although the pay for being her mom’s full time care giver was only $10.76 an hour, the Medicaid managed care plan said she would be paid for 41 hours/week. Instead, the plan keeps cutting Thelma’s service hours.

     

    Read More

     

    Shirley | Jacksonville, FL

    Jacksonville, FL

    After a stroke, Shirley cannot even get out of bed without the use of a special lift, which requires trained aides to operate. And while Medicaid home health aides take care of her during the week, moving her from her bed to a wheel chair, her managed care plan stopped sending aides on the weekend. She has been forced to spend entire weekends in her bed.

     

    Read More

    Alene | Jacksonville, FL

    Jacksonville, FL

    Alene’s life dramatically changed after a surgery needed to remove a growth from her spine left her unable to walk.

     

    Read More

     

     

     

    Florida's Medicaid Long-Term Care HCBS

    A web portal containing a detailed overview video and related resource materials about Florida Medicaid’s Home and Community Based Services (HCBS) program. Produced in three languages - English, Spanish and Haitian Creole - this project helps extremely vulnerable low-income seniors and persons with disabilities struggling to stay at home and out of a nursing home navigate the HCBS program, a complicated and critical benefit --especially during COVID.

     

    Visit Web Portal

    Advocate's Guide to the Florida Long-Term Care Medicaid Waiver January 2021 (4th Edition)

    The guide provides a roadmap to the complex Medicaid program providing home and community-based services for frail elderly and disabled Floridians who want to stay out of a nursing home after they can no longer handle the routines of daily living.

     

    Read Guide

     

     

     

     

     

     

     

     

  • Read STORIES Of Other Floridians

    Relying On Medicaid

    Children

     

    Former Foster

    Care Children

    Pregnant

    Women

    Low-Income Parents

  • Share Your Story

    Let your voice be heard! Please contact us:

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    Sharing your story --in your words and your voice-- is essential.
    Share Your Story | Soapboxx Video

    Share Your Story | Soapboxx Video

     

    In partnership with the National Health Law Program (NHeLP), we are using the Soapboxx video recording app to create short testimonials about how Medicaid has impacted you or a family member.

     

    Using your cell phone, tablet or computer, create a 20-90 second video about your experience with Medicaid. It's simple, easy and quick to do.

     

    Sharing your story on video will serve as a powerful advocacy tool to help educate the public, the media and policymakers in understanding how important Medicaid is for Floridians and their families.

     

    Learn How To Record Your Video

     

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    "The Lived Experience" of Medicaid recipients and their families.

  • We are grateful to the National Health Law Program (NHeLP) for their support of the

    "Medicaid | The Lived Experience" STORIES Project.